000			03041nam a2200433 i 4500
001			CR9781108652599
003			UkCbUP
005			20240508141513.0
006			m|||||o||d||||||||
007			cr||||||||||||
008			180919s2022||||enk o ||1 0|eng|d
020			_a9781108652599 (ebook)
020			_z9781108483742 (hardback)
020			_z9781108718196 (paperback)
040			_aUkCbUP _beng _erda _cUkCbUP
050	0	0	_aR864 _b.P57 2022
082	0	0	_a610 _223/eng/20220107
100	1		_aPostan, Emily, _d1973- _eauthor.
245	1	0	_aEmbodied narratives : _bprotecting identity interests through ethical governance of bioinformation / _cEmily Postan.
264		1	_aCambridge ; _aNew York, NY : _bCambridge University Press, _c2022.
300			_a1 online resource (xiv, 296 pages) : _bdigital, PDF file(s).
336			_atext _btxt _2rdacontent
337			_acomputer _bc _2rdamedia
338			_aonline resource _bcr _2rdacarrier
490	0		_aCambridge bioethics and law
506	0		_aOpen Access. _fUnrestricted online access _2star
500			_aTitle from publisher's bibliographic system (viewed on 05 Jul 2022).
505	0		_aAttending to identity -- Mapping the landscape -- Narrative self-constitution -- Bioinformation in embodied identity narratives -- Encounters with bioinformation : three examples -- Locating identity interests -- Responsibilities for disclosure -- Identity in the governance landscape.
520			_aIncreasing quantities of information about our health, bodies, and biological relationships are being generated by health technologies, research, and surveillance. This escalation presents challenges to us all when it comes to deciding how to manage this information and what should be disclosed to the very people it describes. This book establishes the ethical imperative to take seriously the potential impacts on our identities of encountering bioinformation about ourselves. Emily Postan argues that identity interests in accessing personal bioinformation are currently under-protected in law and often linked to problematic bio-essentialist assumptions. Drawing on a picture of identity constructed through embodied self-narratives, and examples of people's encounters with diverse kinds of information, Postan addresses these gaps. This book provides a robust account of the source, scope, and ethical significance of our identity-related interests in accessing - and not accessing - bioinformation about ourselves, and the need for disclosure practices to respond appropriately. This title is also available as Open Access on Cambridge Core.
650		0	_aMedical records _xAccess control _xPsychological aspects.
650		0	_aPersonal information management _xPsychological aspects.
650		0	_aPatients _xPsychology.
650		0	_aIdentity (Psychology)
650		0	_aData privacy.
650		0	_aMedical records _xLaw and legislation.
776	0	8	_iPrint version: _z9781108483742
830		0	_aCambridge Bioethics and Law.
856	4	0	_uhttps://doi.org/10.1017/9781108652599
999			_c38461 _d38461