Embodied narratives : protecting identity interests through ethical governance of bioinformation / Emily Postan.

Open Access. Unrestricted online access star

Title from publisher's bibliographic system (viewed on 05 Jul 2022).

Attending to identity -- Mapping the landscape -- Narrative self-constitution -- Bioinformation in embodied identity narratives -- Encounters with bioinformation : three examples -- Locating identity interests -- Responsibilities for disclosure -- Identity in the governance landscape.

Increasing quantities of information about our health, bodies, and biological relationships are being generated by health technologies, research, and surveillance. This escalation presents challenges to us all when it comes to deciding how to manage this information and what should be disclosed to the very people it describes. This book establishes the ethical imperative to take seriously the potential impacts on our identities of encountering bioinformation about ourselves. Emily Postan argues that identity interests in accessing personal bioinformation are currently under-protected in law and often linked to problematic bio-essentialist assumptions. Drawing on a picture of identity constructed through embodied self-narratives, and examples of people's encounters with diverse kinds of information, Postan addresses these gaps. This book provides a robust account of the source, scope, and ethical significance of our identity-related interests in accessing - and not accessing - bioinformation about ourselves, and the need for disclosure practices to respond appropriately. This title is also available as Open Access on Cambridge Core.